Lex's Buttons

Monday we were given some info that was shocking, exciting and scary all at once. After a month and a half of waiting, Lex would finally be having surgery to get his Nissen and G-tube placed! The part that was shocking (and all of those other descriptive words) was that it would be the following day. We had been waiting for so long for him to get this taken care of. It's a hurdle that we thought we would never get over. When we thought of going home it never seemed possible because we would think "well first we have to get this g-tube and nissen, and who knows when that will be?!". Tuesday was a very long day for all of us waiting on Lex to get out of surgery. We were told that the procedure itself would take only 'a couple of hours'. So when Lex was taken away from us at 9:10 and we were left sitting in the waiting room, we counted the hours going by. A screen with all of the patient's names slowly scrolled by 597 times, each time sharing with us that Lex was 'In the Operating Room'. Finally the fifth hour rolled around and after expecting to have heard something over 2 hours ago, we were all on the edge of our seats and praying hard. They finally called us back shortly after the fifth hour and shared with us that Lex made things a little complicated by making the typically straight and narrow road of Nissen and G-tube surgery bendy and bumpy, instead. (and rightly so, no one should ever expect anything short of complicated when it comes to Lex ;D) But after all the surgeon was very pleased with the outcome, which is all we cared to hear at that point! So, after a long, long wait Lex finally has been g-tubed and nissen-ed. It is so nice to see the NJ tube out of his nose and just see the nice, sweet face of Lex. Just Lex. The surgeon did decide to just go ahead and go straight to giving him a Mic-key Button. He was uncomfortable for the first couple of days, but is doing much better today. Very little fussing and has been mostly resting. He only had 4 seizures yesterday and none so far at all today, which is AMAZING. The neurologist told us to expect more seizures because after surgery the threshold is lowered for seizures, put praising Jesus once again because, what do you know?! LESS seizures :D We will be having a care conference on Monday to discuss going home. It is crazy to think about but we are so excited that we may really be out of this hospital in as early as a week's time. We know that we will be taking home Lex still having dangerous seizures with desats, but we're prepared to handle that. I believe. So, including the obvious belly button, Lex now has TWO buttons and I love them both because they're a part of the something sweet and amazing that's laying next to me. These are two videos the day after Lex's surgery. He for some reason out of nowhere was wanting to suck-but just on his tongue, he had no interest in his binky. The first one does show his button briefly if you are interested to see. P.S. he is swollen from the surgery if you're wondering why he suddenly has massive chipmunk cheeks.