1) His urine output suddenly became extremely high, causing his input to actually be negative. He was losing weight pretty steadily (though he wasn't gaining to begin with, but was at least holding onto what he had) so the Renal Team started to follow him. They couldn't find any issues with his kidneys specifically but will continue to keep an eye on that. We did find out that he was pretty sufficiently dehydrated because of how much he was urinating. So, he was put on IV fluids for a couple of days to help with that. His electrolytes were also off at this point.
2) I had noticed blood in his stool one night, which was shrugged off by the nurse, so I made sure to let the doctor know myself. After a couple of more occurrences like this one they tested him for Clostridium Difficile which came back positive. He was then put on IV antibiotics for that.
3) His urine culture also began to show infection so he was put on another antibiotic for a urinary tract infection.
In addition to all of these things his seizures have been worse over the past week. For a couple of weeks he only needed Ativan once a week, but this past one he ended up needing it four times. The days that he didn't need it were still not all clear. His seizures were just spread far enough apart that he didn't require Ativan (which is a HUGE blessing!)
Okay, so let's get to some positive things that have happened aka
Five Reasons to Praise. Actually I've just decided to change the name.
Five Reasons to Praise Jesus!
1.) The trileptal ween seems to still be going well, so we are continuing that. Despite the increase in seizures we don't believe the trileptal to be related and we're giving the infections the credit for that uprise. Please pray that this is the case and that when the infections are cleared that he will go back to his "baseline" (if you can even call it that)
2.) We are still in our same room and haven't had to move to intensive care for over a month!!We are SO THANKFUL for this!
3.) We do have something that helps his seizures when they're out of control-Ativan!
4.) He has some fantastic nurses ;)
5.) We have the most amazing and supportive people praying for us and encouraging us constantly. There have been so many times when a kind comment that I read on Lex's prayer page lifts my spirits up a lot. It means so much.

Oh Jackie!!! I love his outfit!! He's soo precious!!!!The update is great reading.It's very informative and to the point which is a wonderfull gift you have.Praising our Savior is always an important message for everyone to see.The Lord is working through Lex always,even if we don't see it."I'll praise You in this storm and i will lift my hands.That you are who You are no matter where I am.That every tear I cry You hold in your hands you never left my side,and though my heart is torn,I will praise You in this storm'
ReplyDeleteI love you so much Jackie.To see you hurt hurts me.If I could help more i would you know.